Saturday, November 28, 2015

GET READY to RUMBLE!

rocky celebrating boxing champion

2016 is right around the corner and it has been 4 years since my stage IV melanoma diagnosis. Thanksgiving of 2010 was the SCArieST ever thinking that it was my last holiday season with my family.

YET, that was not my fate. I found a doctor (Dr. Hamid) at the right place (the Angeles Clinic) and he saved my life with the experimental treatment that does not always work, biochemotherapy, and I lived.

Since then, I have found a new passion in my life, trying to spread cancer awareness. In 2016 I am putting my $$ where my mouth is and heading to Washington D.C. in March to advocate for the MRF. I am a simply mountain gal and heading to our capital scares me, but I am going in honor of those who have passed from the beast.

In June I am organizing a walk for AIM in Southern California.   I am nervous but know I will be blessed with a great committee of volunteers to help raise loads of $$ for melanoma awareness and research monies to find a CURE.

I believe I survived to make a difference and in 2016 I am going to do my part. I am one small person who survived as there are MANY of us out here!  I vow to speak up for those who cannot.

#melanomasucks
#morethanjustskincancer
#blessedtobealive

to borrow a hashtag from a fellow melahomie
#dontstopbelieving

Wednesday, November 11, 2015

YOU SHALL NOT PASS!!

 
As I sat in my hot tub this morning, hoping to see some "fire ball" meteors, of which I did not, I pondered how this is the anniversary of my diagnosis of stage IV melanoma.

If you haven't heard my story before:  Fall of 2010 I had a lump under my left armpit. By thanksgiving, it was about the size of a tennis ball. The doctors had these statements, " give her a shot for pneumonia, she's going to have chemo" & " why did you come here? I could've done this over the phone." "There's nothing I can do."

The shock and horror my family felt is indescribable. We cried and cursed ( well I cursed) and PRAYED for an answer. We reaching out to everyone we knew for help.  I friend of mine who knew someone who knew an important someone, Debra Black, was able to get me an appointment on December 24th, 2010 at the John Wayne Cancer Center.  After a LONG day of tests and scheduling surgery to remove the tumor that was now the size of a grapefruit and causing me unexplainable amount of pain, we received a phone call at around 8:00 that night. The tests said the cancer had spread to my lungs and surgery was out of the question. I was being referred to a medical oncologist named Dr. Omid Hamid at the Angeles Clinic. 

My husband and daughter left after Christmas. I stayed with my parents for the appointment to the Angeles Clinic.  The tumor grew.... and grew... and my hope for surviving went lower and lower....I was heart broken.

The first week of January I saw Dr. Hamid. He said, " I will try to save your life, and if the shit hits the fan, I will tell you. It hasn't hit the fan yet."  I was admitted to St. John's 3 days later for my first of 5 rounds of biochemotherapy and received around 2 years worth of chemotherapy and immunotherapy drugs in 5 cycles. I was bald, I was sick, and I hardly ate a thing. BUT the cancer shrunk and by the last cycle the scans showed no active cancer.  In April Dr. Morton performed a 3 1/2 hour surgery to remove the dead tumor. THE MONSTER under my arm was gone!  AND I still had an arm!  

I share to let you all know I have been there... I have suffered... and I SHARE HOPE that one day you can be back on your feet!  For those who have lost loved ones....during may darkest days of chemo there were times I did not want any more drugs. I did not want to suffer anymore. If the cancer had not responded, I would have called in hospice. I completely and totally understand those life and death decisions faced by cancer patients and their families.  My heart breaks whenever I read that patients are not responding to treatment. WHY ME and Not THEM?

For NOW, CANCER SHALL NOT PASS into me!  you asshole, you tried to take me from my family and I am coming at you in 2016! Now that I feel more human than ever ( as the treatments took about 4 years to feel really over

I head to Washington D.C. in March with MRF to advocate for government support of melanoma awareness!

In June 2016, I am planning a fundraising AIM walk/run to bring even more attention to the dangers of melanoma!  

I do not know where else I may end up...but MELANOMA!  YOUR DAYS are NUMBERED!!


Monday, November 2, 2015

diagnosed & parenthood

The other night my lovely 18 year old daughter came to see me before I fell asleep. She has been dealing with the new world of being a grown up and wanted to discuss some things. She looked at me and said, "what if you are not here?"

I paused....

"What do you mean? I am here!"

Then it hit me like a ton of bricks.

"Do you mean the cancer?" OF COURSE she meant the F-ing cancer!!

What if she needs me and I am not here to help.

Cancer is a horrible thing to face and even more horrible to tell the ones you love you are sick. I cried my eyes out for my daughter especially when I received the diagnosis


I did not want to leave my daughter but I had to and I lived down in southern cal for treatments and I did not know if I would ever return home.

My new melahomie Lisa Butler is fighting stage 4 melanoma with 3 small children at home.
My other new melahomie Aine is stage 4 and HER mother is as well!!

Telling my daughter I had cancer was the worst thing I have ever had to do. It is also why I fought so hard.

To all those mother's out there, keep fighting!

To Lisa, I am so proud every time I see you post your smiling face and I now this has not been easy for you.

To my daughter, I AM SO PROUD of you!!